Thursday , June 24 2021

What is Hydranencephaly? Toddler With & # 39; Devil's Horn & # 39; Requires Reconstructive Surgery



Philippine toddler Clyne Solano needs reconstructive surgery after brain surgery that leaves her head with an unusual back. Even though some people compared his bones with "demon horns", the child's mother said he was an "angel", Glass has been reported.

The 22-month-old man fought a rare condition called hydranencephaly, where the right and left sides of the brain are not well developed.

In March, the doctor performed an operation to remove the swelling in Solano's brain. Even though it was a success, it affected the way the skull developed. Some of his skulls collapse where brain tissue is lost, leaving two backbones.

& # 39; & # 39; Some people say his head resembles a demon's horn, but for us there is no doubt that he is an angel, "said his mother, Justine. "It breaks my heart to see him suffer."

He said that his son is now facing reconstructive surgery to give him a more normal skull – but he is afraid he will not survive another operation. "I don't want to continue for now because I'm afraid my baby isn't strong enough for that," Justine said. "[But] if we don't, the head will look like that for the rest of its life, "he continued.

The family has sold most of their property, he added, to finance Solano's health care. "We will continue to fight as long as Clyne does it, and when he does not have the strength, we will be there for him," he said. "We have heard stories about babies [with] hydranencephaly lives as a teenager; Clyne is strong so I know she can do it. "

Hydranencephalic babies have cerebrospinal fluid sacs where their brain hemispheres should be, according to the National Institute of Neurological Disorders and Stroke. The condition develops in the uterus, but may not become clear for weeks or even months after birth.

When they are a few months old, hydranensefali babies may experience seizures, visual disturbances, deafness, paralysis, blindness and cognitive limitations. Excessive amount of cerebrospinal fluid can also accumulate in their brain, said the Institute.

Although the exact cause of hydranencephaly is unknown, this may be an inherited disorder, the National Organization for Rare Disorders reports.

Although most babies with hydranencephaly die at the age of one year, some children live for several years. There is no cure for hydranencephaly, but some patients undergo surgery to place a shunt that can reduce the pressure from the buildup of cerebrospinal fluid in the brain.


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