Tuesday , July 27 2021

Cystic fibrosis sufferers expressed frustration at a two and a half year delay in the opening of the Beaumont inpatient unit

A student with cystic fibrosis had told of frustration at a two and a half year delay in the inpatient unit building.

Matthew Dempsey said the lack of special facilities for sufferers at Beaumont Hospital in Dublin had become a major obstacle in receiving care.

The 20-year-old man added: "There are four or five cystic fibrosis beds on the St Paul ward and I know it's difficult to separate them but the problem is people with cystic fibrosis must be separated.

"So being on the same ward with other people with respiratory disease is less than ideal."

At present there are only seven beds for cystic fibrosis patients in hospitals.

European standards dictate that there must be one person with conditions for every 10 beds.

But currently there are 160 people accessing services at Beaumont Hospital.

Matthew, from Raheny in North Dublin, said: "Staff and people are fantastic but amenities are not.

Matthew Dempsey said that the lack of special units for CF patients had become a major obstacle in receiving care.

"There needs to be air circulation every five minutes to help prevent infection. None of that.

"We have our outpatient unit but it's very small. The inpatient unit is the biggest part. "

Matthew, who was diagnosed when he was four years old, followed a strict daily treatment and treatment plan, often unable to socialize.

He said: "I took three different nebulisers, 10 different tablets plus permanent antibiotics.

"There are about two hours of physio above that and then a chest examination too."

Irish Cystic Fibrosis chief Philip Watt said the delay in the inpatient unit was "totally unacceptable".

He added: "The reason why these rooms are so important is not only needed for treatment but also where people die.

"This is the last part of jigsaw cystic fibrosis in terms of service in Ireland."

Ambulance outside Beaumont Hospital in Dublin,

Organizations have tried to get inpatient units at Beaumont Hospital for the past eight years,

Mr Watt said the blame game between facilities and the Government was "frustrating".

He added: "This basically suspends patient care.

"So instead of going straight to the hospital, there is a deteriorating condition.

"They have to wait for days and sometimes weeks before they are accepted."

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